36-year-old woman whose eye was removed becomes a TikTok star

A woman who was blindfolded as a teenager has now become a viral TikTok star thanks to her hilarious clips describing her condition.

Sarah Harris, 36, a Manchester-based retail manager, suffers from neurofibromatosis, a genetic disease that causes tumors of nervous tissue.

As a child, he was also diagnosed with childhood optic glaucoma, a rare birth defect that prevents fluid from draining and causes pressure behind his eyes.

Growing up, he received frequent stares from his classmates and was ostracized by people during games where he had a hard time adjusting to feeling “different.”

Evolving: Shocked as a teenager, Sarah Harris is now a viral TikTok star thanks to her hilarious clips describing her condition. Shown with and without prosthetic eye (right) (left)

Sarah was diagnosed as a child with childhood optic glaucoma in the photo; this is a rare birth defect that prevents fluid from draining and causes pressure behind your eyes.

When she was five years old, she visited a specialist at Moorfields Eye Hospital in London and found that her condition had completely affected her eye socket and her brain was putting pressure on the eye.

At the age of 16, after years of constant pain, fearing that her condition would worsen over time, she made a life-changing decision to have her eye removed.

“I was in constant pain and… [regular] infections, if I had quit, it would have gotten worse,” Sarah told me What I Need to Know.

“I was a little worried as there hadn’t been that many operations before because they needed to fix the issues with my lack of orbit.

“However, if I had left him alone, the tumor could have spread to my brain, causing much more damage, and I would have gone completely blind.

“I had to wear a pressure bandage to hold my newly formed eye socket in place, so I had to undergo another surgery to place four abutments on my eye.

Pictured as a child, Sarah was bullied at school for her condition and had a hard time adjusting because she felt “different”.

When she was five years old, she visited a specialist at Moorfields Eye Hospital in London and found that her condition had completely affected her eye socket and her brain was putting pressure on the eye. In the photo, Sarah with her brother Richard before she was spotted

At the age of 16, after years of constant pain, fearing that her condition would worsen over time, she made a life-changing decision to have her eye removed. In the photo, Sarah shortly after her eye was removed

“This was dangerous because it was so thin they had to puncture the remaining bone structure that kept breaking.

‘Six months later I had an eye replacement, which helped me adapt. [into society] because I wasn’t looked at that often.

‘Applying for my first job gave me confidence and [with others]†

Sarah’s condition was probably inherited from her 65-year-old mother, Julia, who also had neurofibromatosis and had to undergo spinal fusion surgery because her spine was “crumbled.”

Other side effects include learning difficulties, epilepsy, scoliosis, an enlarged head, and a higher risk of cancer as some cancers can develop into cancer.

Sarah showed her followers what her prosthetic eye looks like in a TikTok video (pictured)

Pictured today with an eye prosthesis, Sarah has had a total of 30 surgeries since she was first diagnosed.

Since being diagnosed, she has had 30 surgeries so far and also suffers from food phobia of having to starve before each surgery.

The 36-year-old remembers how his condition affected his development, without putting on the two-year-old’s clothes until he was five years old.

She said: “I was small for my age, wearing clothes for a two year old girl.

“I also did speech therapy because part of my lower jaw wasn’t forming properly, and I also had a bit of a delay in reading and writing.

“I received a lot of verbal abuse almost daily, like ‘pop eye’ or ‘one-eyed jack’, which made me sad and angry.

“But I had a good friend in elementary school that I’m still a good friend of today.

Pictured with her prosthesis, Sarah often makes jokes and jokes about her prosthetic eye, like putting her “eye” next to the drink after asking someone to keep an eye on her.

‘I learned to ignore’ [the comments] when i grew up and finally started laughing with them or saying ‘thank you for noticing’ that they don’t really like it.

“It made me realize that some people don’t think before they speak, but I feel like it has made me a stronger person in the long run.”

Over the years, he has had the support of colleagues, managers, and friends.

He often makes jokes and jokes about his prosthetic eye, like when someone asks him to keep an eye on him and then puts his “eye” next to the drink.

To raise awareness and laugh, she decided to upload her story to TikTok, where she made “sketches” with her prosthetic eye.

In a clip that garnered 15 million views and more than 967,000 likes, he whistles “in the eye” as he continues to distance himself from her like Charlie Chaplin.

Users took to the comments to share their admiration for his intelligence and courage with others who shared their experiences with the situation.

One viewer commented, “When I was 16, I lost my eye due to a tumor due to a medical condition… it also destroyed my eye socket.”

Another added: “Okay, but you’re really beautiful.” [sic]

“THIS is body positivity,” wrote another.

One person commented, “This surprised me,” followed by a smiley emoji.

Another person Sarah replied to was, “What are you looking for other than doing this?” he added, “I’ve lost my truth to a tumor, this replaces it.” [sic]

Sarah, who was photographed with her mother, said she was grateful to her parents for forcing her to be independent.

Sarah added: “I was surprised because I didn’t think I would get such an answer.

“A lot of people were interested and told me about myself, my eye, how I lost it, etc. He started asking questions about I do [TikTok] now to raise awareness while having fun.

‘I have it now’ [a tumour] grows on the neck and cheek, which is useless due to the complexity of how it wraps the facial nerves and blood vessels.

“I’m worried about osteoporosis” [in the future] because I’m an active person and that’s one of the many things that make me happy.

“I also had a hysterectomy before because I had a large fibroid tumor in my uterus that had grown to the size of a 22-week-old fetus. I was disappointed at first because I didn’t have a child of my own.

However, I soon realized that I had to prioritize my health, and I am grateful to my family for encouraging me to do things on my own.

“Neurofibromatosis can affect people in so many different ways, and while there is currently no known cure, I hope my platform can play a role in finding it.”