Baby with rare stomach bloating discharged on first birthday –

A boy with a rare genetic condition that causes his intestines to swell and fill with fluid has been released from the hospital just in time for his first birthday.

Max Do, of Park Ridge, Chicago, was born by emergency cesarean section 31 weeks after doctors determined that her abdomen was swollen in the uterus.

He was immediately taken to the intensive care unit at Advocate Children’s Hospital, where it was revealed that doctors diagnosed him with congenital sodium diarrhea, where the body was trying to expel salt from the intestines, causing a buildup of water.

The boy then spent 11 months in the wards and underwent four surgeries to alleviate the condition, including one that left him “almost unconscious” for a week.

His 37-year-old parents, Kim Nguyen and Dan Do, who visit their son every day, feared they would lose him. But as his health improved, Max began to “get very excited” and “greet everyone”, earning him the nickname “the mayor of the NICU.”

Last month, she was allowed to go home just in time for her first birthday, which she spent at home with her family. He also met his six-year-old sister, Ivy.

Congenital sodium diarrhea is a very rare condition with less than 50 known cases worldwide. It could be caused by a series of genetic mutations that made Max “the only person in recorded history” with his own particular changes.

Patients need 24-hour hospital care for the first few months to prevent dehydration, but doctors say they can live a normal life.

The picture above is Max when he was born. His stomach is bloated because a genetic mutation prevents him from absorbing salts, causing fluid retention.

But after months of treatment he was finally discharged and removed from the ward (pictured). He won hearts while he was there because he was “so excited” and “was always waving” to everyone.

Max managed to spend his first birthday at home with his family. He can now also meet his six-year-old sister, Ivy, for the first time.

The baby’s father said Good Morning America as doctors were the first to realize their son would need extra medical attention during a routine scan.

‘When [Kim] she was pregnant, we saw [in] “They saw on ultrasound that Max’s stomach was already swollen and that amniotic fluid was getting in and out of Max as it should, and as a result, Kim’s stomach started to swell very quickly,” he explained.

After their son gave birth, God said it looked like “post-surgery.”

“There was a point where we thought we were going to lose because there were too many procedures.

“And I think he was almost unconscious for a week. For a week he was just sleeping on morphine, trying to recover from surgeries.’

Dr. Michael Chapello, a neonatologist and vice president of pediatrics at the hospital who helped care for Max, said his abdomen was “very swollen” when he was born.

“This usually means that there is some type of intestinal obstruction.

“He had surgery to see… but as he got older—because there was so much fluid in there—we knew we had to investigate exactly why.”

Abdominal swelling is usually caused by a blockage that prevents fluid from flowing from the area.

But blood tests eventually showed that Max suffered from a genetic condition that caused the disease.

“He took every curveball thrown at him and threw it out of the park,” Chapello said.

While on the ward, Chapello added that the young man always tended to “get a lot of attention” because he was “a very excited kid”.

“She always wants to say hello, says hello, smiles, and even if you’re not interested in her right now, it’s hard not to approach her and not say hello.”

Doctors said Max left the ward at 11 months old on May 23, and that this “rarely happens”.

He had arrived just in time for his first birthday on June 4, celebrated at home with his family.

The intestines are lined with special channels that absorb salts from the intestines.

But in Max’s case, these have mutated, meaning they can’t remove salts, causing moisture to build up.

Parents Kim Nguyen and Dan Do say they come to the emergency room every day to see their son. There were times when they were afraid of losing him because of all the surgeries.

Max still needs an IV drip to keep his blood salt levels high and prevent him from becoming dehydrated, but doctors say he can live a normal life.

Doctors say that babies born with this condition immediately have watery diarrhea, even if they are not fed.

Therefore, they need months of hospital care to prevent them from becoming dehydrated and to make sure babies get enough salt needed for normal bodily functions.

After discharge, they will continue to need intravenous drip to receive the saline solution.

But some doctors say those affected will likely continue to have “mild watery diarrhea” or “will tend to lead a normal life”.