The mother of a child with a rare condition called ‘combable hair syndrome’ says she will be upset when her daughter’s condition improves.
Charlotte Davis, 28, from Great Blakenham in Suffolk, took to This Morning today to discuss the condition of her 18-month-old daughter, Layla, who has earned the nicknames Boris Johnson and Albert Einstein.
The rare syndrome, believed to affect around 100 people worldwide, is characterized by dry, curly hair that cannot be combed straight.
Uncontrollable hair syndrome (UHS) develops in childhood, usually between infancy and age three, but may not appear until age 12.
Charlotte Davis (pictured) appeared on This Morning today to discuss her daughter Layla (pictured, right) who has the very rare uncombed hair syndrome.
Little Leyla was born with a head of black hair that fell out at the age of four months, giving way to her typical wild blonde curls.
Children who develop it often have light-colored hair, and there are only about 100 cases in the world.
People with the disorder are thought to get over it when they reach puberty.
Speaking to This Morning of Layla, host of Vernon Kaye and Rochelle Humes, Charlotte said that Doctor Layla’s hair has always been great—the doctors even noticed how much the baby was getting at the scans.
When Leyla was born, like many children, she had a thick lock of black hair and fell out when she was about four months old.
This morning’s presenters Vernon Kaye (far left) and Rochelle Humes (left) said Layla’s unique hairstyle suits her very well.
When Layla’s hair grew back, she had the wild blonde curls typical of the syndrome, and her signature locks began to emerge when she was about a year old.
Due to the shape of the hair follicles, it cannot be combed straight.
According to Charlotte, “My mom kept saying, ‘I think it might be uncontrollable hair syndrome.
“I said it seemed a bit made up… it’s such a crazy name.
“This can’t be true. Nothing can happen.
“But then people started tagging us on Facebook. We got a message from friends. That’s why I called him.
After receiving the diagnosis, the family was invited to join a Facebook group with members from all over the world.
In the group, people share their experiences.
Charlotte explained that one morning a mother went to wake her daughter up and her son’s hair had changed overnight and he no longer looked like UHS.
Rochelle asked Charlotte how she would feel when Layla’s condition improved.
“I think I’m going to be a little upset because I think she looks great,” Charlotte said.
Both hosts noticed that the little girl’s wild curls suited her well.
Vernon said that in addition to Layla’s piercing blue eyes, her hair gave the boy “a lot of character.”
Charlotte talked about how the little girl got so much attention when she went out, that strangers often approached her to ruffle her crazy curls.
Charlotte, who has been candid about the situation before, said she was proud of the young man’s super rare diagnosis.
He said: ‘I’m really proud to be diagnosed because it’s so rare… I don’t think he realizes how incredible this is.
“I just want him to grow up and know that he’s amazing even if he looks different from other people.”
Source: Daily Mail
